Dravet syndrome is a severe form of epilepsy with difficult-to-treat seizures. The seizures can last a long time, resulting in status epilepticus (seizures that do not stop or happen so close together that there is no time to recover between seizures).
Seizures linked to Dravet syndrome usually begin during the first 2 to 15 months of life and affect infants who are otherwise reaching developmental milestones at typical ages. As seizures continue through childhood, most children show some form of developmental disability and develop a crouched walk.
Dravet syndrome is a developmental and epileptic encephalopathy (DEE) that can significantly impact individuals throughout their lifetime.
In the United States, 1 in 15,700 infants is born each year with Dravet syndrome
The best outcomes are more likely with early diagnosis. A doctor can diagnose Dravet syndrome based on symptoms, but genetic blood testing can confirm diagnosis.
Dravet syndrome is associated with multiple seizures occurring on a weekly or daily basis throughout life. Loved ones require constant watch due to long-lasting, high-frequency seizures, motor impairments, and risk of death.
LEARN MORE ABOUT SEIZURE TYPES
15%-20% of children with Dravet syndrome die from sudden unexpected death in epilepsy (SUDEP), prolonged seizures, seizure-related accidents, or infections
Understanding the risk factors associated with seizures can help families navigate the care required for children with Dravet syndrome. Learn about the risks and create your own action plan.
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